Publications

State Strategies for Determining Eligibility and Level of Care for ICF/MR and Waiver Program Participants by Ric Zaharia and Charles Moseley, presents the results of a survey of state developmental disabilities agency officials regarding the policies, procedures employed by their states to determine eligibility and the annual level of care for individuals receiving services furnished through Medicaid waiver and Intermediate Care Facility programs. (July 2008).

Money Follows the Person: Population, Functional, and Quality Indicators for People with Developmental Disabilities by Nancy Kirchner and Charles Moseley, was completed last Fall under a contract with CMS to gather information on key population data elements currently kept by the states on individuals receiving developmental disabilities services. (September 2007).

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Date	Title	Publisher	Document
December 2007	Addressing Potential Conflicts of Interest Arising from the Multiple Roles of Colorado's Community Centered Boards	Colorado DHS/DDD	(482 KB)
December 2007	University of Southern Maine Conflict of Interest Study Summary	Colorado DHS/DDD	(765 KB)
October 2007	Collaboration: UCEDDs, LENDs, and State MR/DD Agencies	AUCD	(267 KB)
October 2007	Adult Services in the AUCD Network	AUCD	(75 KB)
October 2007	Autism Services in the AUCD Network	AUCD	(84 KB)
February 2006	THE GUIDE: NASDDDS Handbook on Inclusive Meetings and Presentations	NASDDDS	(484 KB)
November 2004	GETTING A LIFE: Findings & Recommendations from the NASDDDS Invitational Symposium	NASDDDS	(211 KB)
October 2004	NASDDDS TECHNICAL REPORT: Survey on State Strategies for Supporting Individuals with Co-existing Conditions (ADDITIONAL RESOURCES)	NASDDDS	(465 KB)
April 2004	"Proper and Efficient:" Claiming Federal Financial Participation for National Core Indicator Activities	NASDDDS	(589 KB)
March 2004	Picking up the Pieces of Our own Mistakes	NASDDDS	(293 KB)
October 2003	Individual Budgeting Strategies: Executive Summary (Full Report Flyer w/Order Form)	NASDDDS	(176 KB)
January 2008	Discussion of Key Resource Allocation Policy Issues in Louisiana	HSRI	(137 KB)
June 2004	Never Give Up: Assets Inc.’s Commitment to Community Life for People Seen as “Difficult to Serve”	Assets Inc.	(334 KB)

• Medicaid and Case Management
  for People with Developmental Disabilities... (Revised)
• Having It Your Way:
  Understanding State Individual Budgeting Strategies
• A Supplement to Closing the Gap
• Closing the Gap
• Medicaid and Systems Change: Finding the Fit
• Managing Our Own Supports
• Supporting People with Severe Reputation

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Medicaid and Case Management for People with Developmental Disabilities: Options, Practices, and Issues (Revised), Robin E. Cooper, NASDDDS, May 2006. In 1998, the Association published a monograph titled, Medicaid and Case Management for Persons with Developmental Disabilities authored by Gary Smith and Robin Cooper. Since that time, Medicaid case management policy and practice has continued to evolve with the publication of the new HCBS waiver template and recent changes to case management regulations in the 2005 Deficit reduction Act. We have reedited and updated the 1998 publication to reflect the most current federal regulatory changes and the new issues affecting states in the delivery of Medicaid financed case management services to individuals with developmental disabilities. The publication discusses the implications of new policies and provides reference materials from federal regulations and publications. (Price: $35)

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Having It Your Way: Understanding State Individual Budgeting Strategies. In response to the growing demand for self-directed services, state developmental disabilities agencies have begun to use individual budgets as a cornerstone of their efforts to help persons with disabilities to gain control over their lives. While interest in this subject is strong, until now very little comparative, cross-jurisdictional information has been available regarding the individual budgeting methods used by the states.

To address this information gap, NASDDDS is pleased to announce the availability of the latest publication in its "Special Studies Initiative" series. Entitled Having It Your Way: Understanding State Individual Budgeting Strategies, this report summarizes the findings and conclusions of an 18-month study of individualized funding methodologies currently being employed by state developmental disabilities service systems.

This timely, groundbreaking analysis summarizes the findings of nationwide survey conducted by NASDDDS in mid-2002. It also contains an in-depth analysis and comparison of individual budgeting practices in nine, selected states. (Price $30)

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A Supplement to Closing the Gap: Addressing the Needs of People with Developmental Disabilities Waiting for Supports, Gary A. Smith, NASDDDS, "A Special Studies Initiative" Report, November/December 1999. This publication refines, updates, and expands the methods of forecasting future demand for DD services that were discussed in the original report; provides more in-depth information on the waiting list management policies of selected states; Summarizes noteworthy developments over the past eight months in waiting list litigation across the nation; and encapsulates the key findings of several recent reports dealing with state DD waiting lists. With Appendices (Price: $10)

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Closing the Gap: Addressing the Needs of People with Developmental Disabilities Waiting for Supports, Gary A. Smith, NASDDDS, "A Special Studies Initiative" Report, May 1999. This groundbreaking report: (a) summarizes current knowledge concerning the dimensions of the waiting list gap, including the reasons behind the interstate variations in access to services as well as the complex factors driving present and future service demand patterns; (b) describes the various state-level initiatives that are underway across the country to close the service gap, plus the strategies that are being used and the linkages that are being drawn to broader system reconfiguration efforts; (c) analyzes the various state approaches to establishing and maintaining waiting lists, including how states use related data for strategic planning purposes; and (d) pointing out the effects of federal Medicaid policies on the states' capacity to meet demand for home and community-based supports. The report also explores the implications of pending litigation (including Doe v. Chiles in Florida, L.C. v. Olmstead in Georgia and similar suits in five other states) on future state efforts to close the waiting list gap. (Price: $25)

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Medicaid and Systems Change: Finding the Fit, Robert M. Gettings and Gary A. Smith, NASDDDS, February 1998. This incisive, groundbreaking report explores the various policy options available to the states as they redesign their MR/DD service delivery systems in ways that promote flexible, community-centered approaches to supporting people with developmental disabilities and making more effective use of public dollars. (Price: $25)

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Managing Our Own Supports: A Primer on Participant-Driven Managed Supports: Applying Managed Care Strategies in Participant-Driven Systems for Long-Term Supports for People with Developmental Disabilities, John M. Agosta and Madeleine Kimmich, NASDDDS and the Human Services Research Institute (through the joint Center for Managed Long-Term Supports for People with Disabilities), March 1997. This publication explains how managed care principles can be used to further the emerging vision of full community participation and self-determination for people with developmental disabilities. (Price: $25)

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Supporting People with Severe Reputations in the Community, Michael Smull and Susan Burke Harrison, NASMRPD, September 1992. Complete with an action plan, this guidebook is designed to help develop specific strategies for dealing with individuals who present major behavioral challenges. (Price: $10)

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To Order A Publication: Print a copy of the PDF Order Form and mail your check payable to NASDDDS, PO Box 822738, Philadelphia, PA 19182-2738 OR fax this form to 703·684·1395/703·683·8773 and an invoice will be emailed to you. (Shipping and postage are not included.) Orders we be mailed using USPS Priority Flat Rate Envelope ($4.80) for up to three/four publications or USPS Priority Flat Rate Box ($9.80) for larger shipments. Applicable postage costs will be added to your order total. Express shipping is available via FedEx, DHL, or UPS using the recipient's account number or will be invoiced at actual cost.

If you are unable to access the PDF file, you may request an order form by contacting Linda Miller, Office Manager/Administrative Assistant at 703·683·4202.